Joe has used mixed methods to identify items for and quantitatively assess three questionnaires including:
- Development of a disease specific health-related quality of life (HRQoL) questionnaire for severe asthma. The Severe Asthma Questionnaire (SAQ).
- Development of a questionnaire assessing the frequency of non-specific symptoms in fibromyalgia, chronic fatigue and irritable bowel syndrome. The General Symptom Questionnaire 65 (GSQ-65)
- Modification of this questionnaire for use as a measure of extra-pulmonary symptom burden in severe asthma. GSQ-Asthma (GSQ-A)
Joe has also carried out a feasibility assessment of a novel lifestyle and educational intervention for Fibromyalgia known as Body Reprogramming. He has since conducted a pilot study of a modified version of this intervention which targets the extra-pulmonary symptoms seen in severe asthma.
Joe also has links with the Supported Self-Management work programme in Interstitial Lung Disease (ILD). This collaboration between Birmingham and Exeter, has explored patient perceptions of using spirometers (devices to test the functioning of the lungs) to monitor disease progression.
Since moving to the University of Birmingham, Joe has worked on the Inclusive PRO study. This project is collecting data from multiple NHS sites to identify what stops people from providing questionnaire data in health research, with a focus on under-represented groups. This study is supported by the Birmingham NIHR BRC and CRF.