Recent publications
Article
Hussain, N, Ma, C, Hirschfield, GM, Walmsley, M, Hanford, P, Vesterhus, M, Kowdley, K, Bergquist, A, Ponsioen, C, Levy, C, Assis, D, Schramm, C, Bowlus, C, Trauner, M, Aiyegbusi, OL, Jairath, V & Trivedi, PJ 2024, 'A Protocol for the Development of a Core Outcome Set for Clinical Trials in Primary Sclerosing Cholangitis', BMJ open.
the PC-COS Children Study Group, Seylanova, N, Chernyavskaya, A, Degtyareva, N, Mursalova, A, Ajam, A, Xiao, L, Aktulaeva, K, Roshchin, P, Bobkova, P, Aiyegbusi, OL, Anbu, AT, Apfelbacher, C, Asadi-Pooya, AA, Ashkenazi-Hoffnung, L, Brackel, C, Buonsenso, D, De Groote, W, Diaz, JV, Dona, D, Galvin, AD, Genuneit, J, Goss, H, Hughes, SE, Jones, CJ, Kuppalli, K, Malone, LA, Mcfarland, S, Needham, DM, Nekliudov, N, Nicholson, TR, Oliveira, CR, Schiess, N, Segal, TY, Sigfrid, L, Thorne, C, Vijverberg, S, Warner, JO, Were, WM, Williamson, PR & Munblit, D 2024, 'Core Outcome Measurement Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID) in Children and Young People: An International Delphi Consensus Study “PC-COS Children”', European Respiratory Journal. https://doi.org/10.1183/13993003.01761-2023
McMullan, C, Haroon, S, Turner, G, Aiyegbusi, OL, Subramanian, A, Hughes, SE, Flanagan, S, Nirantharakumar, K, Davies, EH, Frost, C, Jackson, L, Guan, N, Alder, Y, Chong, A, Buckland, L, Jeyes, F, Stanton, D & Calvert, M 2024, 'Key considerations for digital decentralised clinical trials from a feasibility study assessing pacing interventions for Long COVID', Scientific Reports.
Alger, E, Van Zyl, M, Aiyegbusi, OL, Chuter, D, Dean, L, Minchom, A & Yap, C 2024, 'Patient and Public Involvement and Engagement in the Development of Innovative Patient-Centric Early Phase Dose-Finding Trial Designs', Research Involvement & Engagement, vol. 10, 63. https://doi.org/10.1186/s40900-024-00599-7
Phillips, T, Aiyegbusi, OL, Cockwell, P, Wheeler, DC, Kalra, PA, Taal, MW & Fraser, S 2024, 'Potentially modifiable factors associated with health-related quality of life among people with chronic kidney disease: baseline findings from the National Unified Renal Translational Research Enterprise CKD (NURTuRE-CKD) cohort', Clinical Kidney Journal. https://doi.org/10.1093/ckj/sfae010
Hughes, SE, McMullan, C, Aiyegbusi, OL, Shaw, K, Kinsella, F, Ferguson, P, Khatsuria, F, Burns, D, Pyatt, L, Ansell, J, Chakera, E, Richardson-Abraham, J, Denniston, AK, Davies, EH, Craddock, C & Calvert, M 2024, 'Protocol for a mixed-methods study to develop and feasibility test a digital system for the capture of Patient-Reported Outcomes (PROs) in patients receiving Chimeric Antigen Receptor T-cell (CAR-T) therapies (The PRO-CAR-T Study)', BMJ open, vol. 14, no. 3, e085392. https://doi.org/10.1136/bmjopen-2024-085392
Aiyegbusi, OL, Cruz Rivera, S, Roydhouse, J, Kamudoni, P, Alder, Y, Anderson, N, Baldwin, RM, Bhatnagar, V, Black, J, Bottomley, A, Brundage, M, Cella, D, Collis, P, Davies, E-H, Denniston, AK, Efficace, F, Gardner, A, Gnanasakthy, A, Golub, RM, Hughes, SE, Jeyes, F, Kern, S, King-Kallimanis, BL, Martin, A, Mcmullan, C, Mercieca-Bebber, R, Monteiro, J, Peipert, JD, Quijano-Campos, JC, Quinten, C, Rantell, KR, Regnault, A, Sasseville, M, Schougaard, LMV, Sherafat-Kazemzadeh, R, Snyder, C, Stover, AM, Verdi, R, Wilson, R & Calvert, MJ 2024, 'Recommendations to address respondent burden associated with patient-reported outcome assessment', Nature Medicine. https://doi.org/10.1038/s41591-024-02827-9
Litchfield, I, Calvert, MJ, Kinsella, F, Sungum, N & Aiyegbusi, OL 2023, '"I just wanted to speak to someone - and there was no one...”: using Burden of Treatment Theory to understand the impact of a novel ATMP on early recipients', Orphanet Journal of Rare Diseases, vol. 18, no. 1, 86. https://doi.org/10.1186/s13023-023-02680-y
Comment/debate
Aiyegbusi, OL 2024, 'Comprehensive conservative care for kidney failure: The need for evidence-based guidance', Kidney International Reports. https://doi.org/10.1016/j.ekir.2024.06.013
Taylor, S, Law, K, Coomber‑Moore, J, Davies, M, Thistlethwaite, F, Calvert, M, Aiyegbusi, O & Yorke, J 2024, 'Correction: Patient‑reported outcome (PRO) instruments used in patients undergoing adoptive cell therapy (ACT) for the treatment of cancer: a systematic review', Systematic Reviews, vol. 13, no. 1, 117. https://doi.org/10.1186/s13643-024-02540-1
Aiyegbusi, OL & Fenton, A 2024, 'The impact of rare kidney diseases on kidney failure', The Lancet, vol. 403, no. 10433, pp. 1211-1213. https://doi.org/10.1016/S0140-6736(24)00198-3
Review article
Khatsuria, F, McMullan, C, Aiyegbusi, OL, Shaw, KL, Iqbal, R, Kinsella, F, Wilson, K, Pyatt, L, Lewis, M, Weldon, SMR, Burns, D, Chakraverty, R, Calvert, M & Hughes, S 2024, 'Development of a conceptual framework for an electronic patient-reported outcome (ePRO) system measuring symptoms and impacts of CAR-T cellular therapies in patients with haematological malignancies: A rapid review', The Lancet Oncology.
Sakthivel, P, Mostafa, A & Aiyegbusi, OL 2024, 'Factors that influence the selection of conservative management for end stage renal disease – a systematic review', Clinical Kidney Journal, vol. 17, no. 1, sfad269. https://doi.org/10.1093/ckj/sfad269
Hughes, SE, Aiyegbusi, OL, McMullan, C, Turner, GM, Anderson, N, Cruz Rivera, S, Collis, P, Glasby, J, Lasserson, D & Calvert, M 2024, 'Patient-reported outcomes in integrated health and social care: A scoping review', JRSM Open, vol. 15, no. 3, pp. 1-9. https://doi.org/10.1177/20542704241232866
Aiyegbusi, OL 2023, 'COVID-19 related headaches: epidemiology, pathophysiology, impacts, and management', Current opinion in neurology. https://doi.org/10.1097/WCO.0000000000001219
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