Dr Karen Shaw joined the Centre for Patient Reported Outcomes Research in 2022 where she manages Patient and Public Involvement and Engagement (PPIE) for the NIHR Blood and Transplant Research Unit in Precision Cellular Therapeutics. As such, she is responsible for developing and implementing the PPIE strategy to ensure that patient and public voices are fully represented in the research undertaken across the Universities of Birmingham and Oxford.
Karen is a long standing member of the University, as she was originally appointed in 2000 as the National Programme Co-ordinator for a project to develop and evaluate a programme of transitional care for young people with long-term conditions. This won a BUPA Clinical Excellence Award and informed national policy in transitional care. She was subsequently awarded a Birmingham Research Fellowship and led various projects, including the first ever study to explore generic prognostic indicators in children’s end of life care, and research to develop the Spectrum of Children’s Palliative Care Needs; a prognostic based framework to facilitate the collection of standardised data.
Karen moved to the Institute of Applied Health Research in 2014 to join the NIHR CLAHRC West Midlands Team. Here she led several projects in children’s health and palliative care. During this time she was awarded Marie Curie Funded study to evaluate the Child and Young Person’s Advance Care Plan (a national document endorsed by NICE). Findings from this study supported revision of the main documents, development of new professional guidance and an Educational Standards Framework. Karen also led the first national survey of advance care planning in perinatal care settings.
She was also co-applicant of NIHR funded research to develop a toolkit to support parental involvement in the Child Death Review (CDR).
Karen has also worked on a range of adult-orientated (NIHR) studies to provide methodological expertise, ranging from home monitoring in cystic fibrosis, health inequalities in home dialysis, health seeking behaviour in arthritis.